HEAL-funded researchers are generating massive amounts of data toward addressing the intertwined public health challenges of undertreated pain, and opioid misuse, addiction, and overdose. The initiative has set up a cloud-based platform and user-friendly resources to optimize data analysis and sharing.

• HEAL Data Platform
• HEAL Data Stewardship Resources

• Acute to Chronic Pain Signatures
• Justice Community Overdose Innovation Network (JCOIN)
• HEALthy Brain and Child Development Study
• HEALing Communities Study
• HEAL Data2Action Program
• HEAL Target and Compound Library
• Preclinical Screening Platform for Pain (PSPP) Database
• Program to Reveal and Evaluate Cells-to-Gene Information that Specify Intricacies, Origins, and the Nature of Human Pain (PRECISION Human Pain) Network
• PURPOSE – The Pain Researcher Network
• Research on Interventions for Stability & Engagement (RISE) Network Tier 1 Common Data Elements Guide
• Research on Interventions for Stability & Engagement (RISE) Network Tier 1 Common Data Elements Guide – Spanish Translation
• Restoring Joint Health and Function to Reduct Pain (RE-JOIN) Consortium

Pain and addiction are conditions shaped by biology, psychology, social and cultural contexts, and environment. People who have lived and living experience (PWLE) with these conditions bring an important perspective to virtually all aspects of research. The Patient and Community Engagement Tip Sheets and accompanying worksheets are designed to equip researchers with tools to engage with PWLE and community members effectively. Download the tip sheets to learn how to plan for patient and community engagement, best practices for fostering genuine relationships, and how to disseminate findings in a meaningful and impactful way.

• Patient and Community Engagement in Planning HEAL-Funded Research
• Patient and Community Engagement in Conducting HEAL-Funded Research
• Patient and Community Engagement in Disseminating HEAL-Funded Research
• Identifying Partners to Engage Worksheet
• Anticipating Barriers to Engagement with PWLE and Communities Worksheet

• Research Planning
  • Budgeting for Engagement Activities – Patient-Centered Outcomes Research Institute (PCORI)
  • Compensation Framework – PCORI
  • Engagement Plan Template – PCORI
  • Engagement Tool and Resource Repository for Patient-Centered Outcomes Research – PCORI
  • Guide for Engaging with Research Partners about Data Analysis – PCORI
  • Patient Engagement in the Design and Conduct of Medical Device Clinical Studies – Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders – U.S. Food and Drug Administration
  • Research Fundamentals: Preparing You to Successfully Contribute to Research – PCORI
• Conducting Research
  • Foundational Expectations for Partnerships in Research – PCORI
  • PCORnet Principles of Partnership: An Engagement Assessment Tool – PCORI
• Dissemination
  • Plain Language: Getting Started or Brushing Up – NIH
  • Words Matter – Terms to Use and Avoid When Talking About Addiction – National Institute on Drug Abuse
  • Person-first and Destigmatizing Language – NIH
• Measuring and Assessing Patient and Community Engagement
  • Measures for Multiple Audiences
    • Assessment Instruments for Measuring Community Engagement – National Academy of Medicine
    • Community Engagement Survey – UNM College of Population Health, Center for Participatory Research
    • Partnership Trust Tool Survey – Centers for Disease Control and Prevention, Prevention Research Centers
    • The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research – University of Warwick
  • Measures for Researcher Experience
    • On Measuring Community Participation in Research – RAND Corporation
    • Community Network Assessment – National Cancer Institute
    • Key Informant Survey – UNM College of Population Health, Center for Participatory Research
    • Ways of Engaging – Engagement Activity Tool (WE-ENACT) – PCORI
  • Measures for Research Partner Experience
    • Progress in Community Health Partnerships: Research, Education, and Action – Johns Hopkins University Press
    • Research Engagement Survey Tool (REST) – New York University
  • Measures for Coalitions/Organization Members
    • Internal Coalition Effectiveness Instrument (ICE©) – University of Nebraska

• National Institute on Drug Abuse
• National Institute of Neurological Disorders and Stroke
• NIH Pain Consortium
• NIH Brain Development Cohorts (NBDC) Data Sharing Platform
• All of Us Research Program
• Interagency Pain Research Coordinating Committee (IPRCC)

• HHS Overdose Prevention Strategy
• FDA Opioid Medications Webpage